About Rare Diseases International

Rare Diseases International (RDI) is the global alliance of PLWRD of all nationalities across all rare diseases. 

RDI brings together national and regional RD patient organizations as well as international federations for specific diseases and multi-stakeholder groups. 

Our mission

RDI’s mission is to be a strong common voice on behalf of PLWRD around the world. Our goals include:

RDI partners with experts from the academic, private, and public sectors to ensure the relevance and enhance the impact of its activities.

RDI Membership

120 member organizations from over 45 countries

Active in over 150 countries in 6 continents

In 2021, RDI successfully advocated for the adoption of a United Nations General Assembly (UNGA) Resolution on Rare Diseases6 and the current initiative of the World Health Assembly resolution on rare diseases 2025.
RDI has now received its status of Non-State Actor in Official relation with the World Health Organization.