Secretariat Sara Brambilla Global Programme Manager, Rare Diseases International Dr Taila Hartley Research Genetic Counsellor and Operations Director, Care4Rare Canada; Investigator, CHEO Research Institute Alexandra Heumber Perry Chief Executive Officer, Rare Diseases International Heather Howley Research Director, CHEO Research Institute Alexandra Lianes Senior Executive Assistant, Rare Diseases International Alanna Miller Global Policy Coordinator, Rare Diseases International Dr Chloe Wilson Senior Medical Editor, The Lancet